Last February, the National Keratoconus Foundation (NKCF) presented its annual vision symposium in Southern California. If you were unable to attend this event and are interested in learning about the latest keratoconus research and treatments, the NKCF has made available audio and video recordings from the symposium. [Read more...]
Celebrate May: It’s Healthy Vision Month
May 3, 2012 By Leave a Comment
There is much to celebrate in May: May Day, Cinco de Mayo, and Mother’s Day probably come to mind quickly. What you might not know is that this month is Healthy Vision Month, a health observance established by the National Eye Institute (NEI), one of the National Institutes of Health (NIH). [Read more...]
We Went Blue! Did You?
May 2, 2012 By Leave a Comment
On Monday, we went Go Bold Blue at BFS in support of the Sjögren’s Syndrome Foundation (SSF) and Sjögren’s awareness month. We were clad in blue and denim and helping to educate others about Sjögren’s syndrome as well as share our knowledge of treatments for the dry eye that is one of the hallmarks of this disease. Informational brochures, fliers, and stickers were available in our office.
With the help of matching staff contributions, BFS donated hundreds of dollars to the Sjögren’s Syndrome Foundation. These funds will help support the SSF’s new goal to shorten the time to diagnosis by 50% in 5 years.
Did you go blue? We hope you did as it supported this cause that is important to so many of us in the BFS community. Thank you.
Keratoconus Patient-Education Seminar in Florida
April 26, 2012 By Leave a Comment
The National Keratoconus Foundation (NKCF) will be presenting a keratoconus education seminar in Fort Lauderdale, Florida, on May 5 for keratoconus patients and their family members. [Read more...]
The Sjögren’s Syndrome Foundation Needs Your Stories
April 19, 2012 By Leave a Comment
If you or your family has been affected by Sjögren’s Syndrome, please take a few minutes to share your story with the Sjögren’s Syndrome Foundation (SSF) and lend your voice to their advocacy efforts as they testify on Capitol Hill next week. [Read more...]
Assistive Devices for Low-Vision
April 12, 2012 By Leave a Comment
Even with the best medical care and corrective lenses, some still need a little extra vision help to complete everyday activities or pursue favorite hobbies. [Read more...]
April is Sjögren’s Awareness Month
April 5, 2012 By Leave a Comment
Spring is in full swing across the country this month—a time of renewal and transformation as the days grow longer, temperatures rise, and flowers begin to bloom. The Sjögren’s Syndrome Foundation reminds us that April is also Sjögren’s awareness month with a focus on their new campaign to transform the level of awareness of Sjögren’s syndrome and shorten the time to diagnosis by 50% in 5 years. [Read more...]
Telephone Education and Support Group for Coping with Chronic Graft Versus Host Disease
March 29, 2012 By Leave a Comment
In our previous post, we talked about types of support groups, why you might consider one, and how to locate and evaluate the available choices. Here is a great support opportunity for our community members with chronic GVHD.
The National Bone Marrow Transplant Link (nbmtLINK) is offering a free 4-week Telephone Education and Support Group on four consecutive Tuesdays starting April 10, 2012 through May 1, 2012 from 7:00 – 8:15 pm (EST) for survivors and caregivers who are coping with the late effects of chronic Graft versus Host Disease (cGvHD). [Read more...]
Support Group Primer
March 22, 2012 By 2 Comments
Never considered yourself the support group “type”? Maybe it’s time to reconsider. Research performed over the past decade shows strong evidence that social support yields reduced mortality risk and greater mental health. Patients facing serious health challenges who had strong support systems reported reduced stress and depression, improved pain control and fatigue, and increased self-image. Here’s what you need to know about finding a support group that works for you. [Read more...]
Updated Sjögren’s Syndrome Self-Help Booklet Available
March 15, 2012 By Leave a Comment
The Sjögren’s Syndrome Foundation has recently updated their Self-Help Booklet and has made it available to download free of charge. In this third edition, you will find the latest information and strategies for coping with the challenges presented by Sjögren’s Syndrome. Topics covered include: [Read more...]