One of the eye health disorders some BFS patients are trying to manage is chronic ocular GVHD, an eye disease common for those who treated cancer with a transplant which can have a significant effect on one’s quality of life.
Our friends with chronic ocular GVHD might like to know that there is currently a need for participants in a National Cancer Center Institute-funded study based out of the Fred Hutchinson Cancer Research Center called INSPIRE. The study’s goal is to improve the lives of transplant survivors by providing phone and online resources to help transplant survivors:
- Boost health by reducing health risks and helping their heart and bones
- Renew outlook by helping them feel better about their life, reduce stress and find more pleasure
- Restore energy by helping them beat fatigue, get moving and get stronger
Basically, they want to see if the information they provide by phone and internet helps reduce the common health-related concerns of those who are post-transplant. It strikes me as a wonderful way to use technology to address real quality of life issues. We’d love to hear about the experiences of anyone who decides to participate!