Julie McCawley developed Stevens Johnson Syndrome (SJS) at the age of 10 months. It was a harrowing ordeal for her single mother, Jean McCawley, as she had never heard of this disease and was unable to find any information about it. She felt alone, helpless, and afraid as her daughter fought for her life.
This traumatic personal experience provided the spark for Jean to found the Stevens Johnson Syndrome Foundation. She never wanted another family to have to struggle so hard to find information about the disease and connect with others who shared these same experiences (more about her story here).
Now a vibrant college student, Julie shares her mother’s passion for promoting awareness and education about SJS. She recently created a public service announcement on SJS. Her video features photos of herself during her medical treatment to illustrate the severity of this disease and recommends where to find more information and how to become involved in support and promotion of this cause.
Check out Julie’s SJS Public Service Announcement on YouTube today. Thanks, Julie, for sharing your story and helping to spread the word about Stevens Johnson Syndrome.