Spring is in full swing across the country this month—a time of renewal and transformation as the days grow longer, temperatures rise, and flowers begin to bloom. The Sjögren’s Syndrome Foundation reminds us that April is also Sjögren’s awareness month with a focus on their new campaign to transform the level of awareness of Sjögren’s syndrome and shorten the time to diagnosis by 50% in 5 years.
This month, Boston Foundation for Sight is teaming with the Sjögren’s Syndrome Foundation by participating in Go Bold Blue Day to raise funds and awareness for Sjögren’s syndrome. Each participating Go Bold Blue organization selects a designated day in April for individuals to wear blue for the day, make a monetary donation, and educate others about Sjögren’s syndrome and its effects. A promotional materials kit will be provided to each participating group. We invite you to join, too. Contact the Sjögren’s Syndrome Foundation for more information and to register your organization.
Also, this month brings the annual Sjögren’s Syndrome Foundation National Patient Conference on April 20 and 21 in La Jolla, California. This year’s conference, Charting the Course, will comprise two days of presentations by prominent Sjögren’s experts to provide you with a greater understanding of the disease and strategies for coping and management. Topics covered will include:
* Sleep Disorders and Sjögren’s
* Dermatological Issues and Sjögren’s
* Gastrointestinal Issues of Sjögren’s
* Gynecological and Urinary Issues with Sjögren’s
* Sjögren’s Survival: A Patient Perspective
* Is it Lupus or Sjögren’s?
* Management of Dry Eye
* Dry Mouth and Sjögren’s
* Testing New Drugs and Future Directions
* Sjögren’s Research Update
If you are unable to participate in Go Bold Blue Day or attend the national patient conference, there are many other ways to participate in Sjogren’s syndrome awareness month. Here are a few suggestions:
* Share information at a community health fair
* Post an informational fact sheet on a community or workplace bulletin board
* Sponsor a local fundraising event
* Talk to friends about how Sjogren’s syndrome has impacted your life
* Support Team Sjögren’s run in the Country Music Marathon
For assistance and support in your efforts, contact the Sjögrens Syndrome Foundation.
How will you recognize Sjögren’s awareness month?