27th Annual FD Family Day and Conference June 10 in NYC

The Dysautonomia Foundation is presenting its annual Family Day and Conference for families who have been affected by Familial Dysautonomia (FD). Some in our PROSE treatment community have FD, a rare genetic neurological condition that affects the sensory and autonomic nervous systems causing a number of severe health problems including ophthalmologic problems. Each year, the Dysautonomia Foundation, dedicated to research, support, and public awareness of FD, brings together FD families for a day of information sharing, networking, and fun.

27th Annual FD Day Conference

Sunday June 10th, 2012 – 10:00am to 3:00pm

NYU Langone Medical Center

550 First Avenue, New York, NY 10016

The conference agenda includes:

* Kosher continental breakfast and kosher buffet lunch

* Presentations by FD physicians and researchers on treatment developments and research projects

* Q&A panel with health-care, legal, and social work specialists

* Special presentation panel by FD adults

* Children’s activities, including a magic show, games, crafts, and entertainment

* Casino games and dinner party for FD adults (age 18+, reservations required)

If your family has been impacted by FD, don’t miss out on this opportunity to learn about the latest research and treatment developments and connect with other FD families. Registration is required for this event. For questions or more information, contact the Dysautonomia Foundation (212-279-1066).

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