New Online Patient Resources from the National Keratoconus Foundation

Each year, the National Keratoconus Foundation (NKCF) presents patient education symposiums for people with keratoconus and their families. These seminars provide valuable information on the disease process, treatment protocols, and current research. For our PROSE patients with keratoconus who have been unable to attend one of these events, NKCF has posted the symposium presentations on their website for viewing. These online presentations include:

  • Introduction to Keratoconus
  • Non-Surgical Rehabilitation for Persons Living with Keratoconus
  • Corneal Cross-linking
  • Corneal Topography
  • Understanding Keratoconus

In addition to these materials, three new educational videos have also been added to their patient resources:

  • Keratoconus
  • Corneal Crosslinking
  • Transplant Surgery

One of the benefits of being able to attend a keratoconus patient education symposiums is the opportunity to network with other keratoconus patients and their families. Sharing experiences, information, and emotional concerns can be empowering and reassuring for everyone. If you are not able to attend a seminar or a support group, NKCF offers an online forum that enables you to connect and communicate with others in a caring and supportive community.

The NKCF e-mails recent news, research, and information in monthly updates and quarterly newsletters. The NKCF March e-update focused on new contact lens options for keratoconus. One of the options highlighted was a scleral lens prosthetic device (SPLD) developed by BFS. Researchers investigated the feasibility of correcting ocular higher order aberrations (HOAs) in keratoconus using wavefront-guided optics in an SLPD. This study published in the April issue of Optometry & Vision Science found that a customized SLPD with wavefront-guided optics corrected the HOA of advanced KC patients to normal levels and significantly improved their vision.

You can keep up with the latest keratoconus information by signing up for the NKCF quarterly newsletter and monthly e-updates. Have you discovered other helpful keratoconus resources? Please share them here with our community.