Stevens Johnson Syndrome Foundation Asks for Support for Mandatory Reporting System of Drug Reactions

SJS ribbonThe Stevens Johnson Syndrome Foundation is reaching out to our BostonSight® PROSE community to ask for help with promoting a citizen petition to the Food and Drug Administration (FDA) for a Mandatory Reporting System of Adverse Drug Reactions. This is a great and easy way to add your voice in support of a cause that is important to so many in our BFS community whose lives have been impacted by Stevens Johnson Syndrome (SJS).

SJS is a severe, potentially life-threatening, immune system reaction, often to medications. According to the SJS Foundation, over 200,000 people die each year from adverse drug reactions but they believe the cases are likely even higher due to a lack of reporting requirements, citing that less than 1% of all adverse drug reactions are reported to the FDA. The citizen petition sponsored by the foundation is requesting that the FDA implement a mandatory adverse drug reaction reporting system by physicians and hospitals of all cases of Stevens Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN).

If you would like to consider lending your support to help them reach their 5,000-signature goal you can sign this online petition and encourage friends and family to do the same.

For more information, you can view the complete petition online or contact the Stevens Johnson Syndrome Foundation.