Useful BMT Infonet Webcasts

If you have been unable to attend any of the educational symposiums offered by BMT Infonet for transplant recipients and their families, the organization has provided an easy way for you to access the information presented without leaving home. BMT Infonet’s webcasts are free of charge and accessible via computer. You will be able to hear leading experts talk about the latest treatments and research developments in the field of bone marrow and stem cell transplantation and GVHD. [Read more…]

Lea Morrison: A Winner on Many Levels

At age 32, Lea Morrison, had recently gotten married and was looking forward to starting a family with her husband. At this time, Lea did not know that over the next four years she would learn just how important her eyes were in communicating deeply with those around her. It was during this year of her life that she received shocking news from her doctor: Lea was diagnosed with chronic myelogenous leukemia (CML). [Read more…]

National GvHD Health Symposium

Of interest to our community members with GVHD and their families and caregivers is the upcoming 2011 National GvHD Health Symposium on Friday, November 4, in Cleveland, Ohio.

This all-day informational event will focus on the most recent research related to the causes, treatment, and management of GvHD. Two tracks will be presented: one for BMT survivors and their families and caregivers and the other for health-care professionals for which continuing education credit will be offered. [Read more…]

GVHD Telephone Support Group Available Now!

Sponsored by the National Bone Marrow Transplant Link, this telephone education and support group for bone transplant survivors may be a great resource for our friends with GVHD.  Titled Coping with Chronic Graft versus Host Disease, these phone sessions are facilitated by Sandra Mitchell, PhD, CRNP, AOCN and Michael Krumlauf, RN, MSN from the National Institutes of Health.

The FREE sessions are four weeks long with one phone call per week for groups of 8-10 survivors.  The next group begins on October 20, 2011 and will discuss the following topics:

  • Week 1: Overview of Chronic Graft versus Host Disease
  • Week 2: Understanding and Living with Chronic Graft versus Host Disease
  • Week 3: Exploring Options for Improving Health and Well-Being
  • Week 4: Facing Forward: Developing Your Personal Plan for Managing Chronic Graft versus Host Disease and Living Well

For additional information or to register, please call: Tiffany Rowe at 800-LINK-BMT (800-546-5268) or email:  tiffanyrowe@nbmtlink.org.

 

BMT Infonet T-shirts

Here’s a great way to show your support for a cause that is important to so many members of our BFS community. BMT Infonet’s new Got Marrow? And Stop GVHD t-shirts are sure to spark conversations about transplantation wherever you go. [Read more…]

Illness Begets Art

Willard Traub, a professional photographer in the Boston metro area and a BFS patient, chronicled his journey of cancer diagnosis, bone marrow transplant, and recovery in a series of photographs and poems that successfully capture his reflections of hope and healing. [Read more…]

Study Aims to Improve Transplant Survivors Quality of Life

One of the eye health disorders some BFS patients are trying to manage is chronic ocular GVHD, an eye disease common for those who treated cancer with a transplant which can have a significant effect on one’s quality of life.   [Read more…]