If you had purchased a very old home and wished to restore it to its original state, you’d probably first begin by researching the history and looking for old photos or sketches. [Read more...]
Changing Roles in Health-Care: Empowered Patients Achieve Optimal Outcomes
November 1, 2012 By Leave a Comment
Over the last several decades, the traditional model of health-care delivery has dramatically shifted with ownership of the process now predominantly in the hands of the health-care consumer instead of the provider. Patients are now more empowered in many of their health-care choices from insurance coverage, providers and facilities, and even treatment decisions. [Read more...]
GVHD Telephone Support Group Available Now!
September 27, 2011 By Leave a Comment
Sponsored by the National Bone Marrow Transplant Link, this telephone education and support group for bone transplant survivors may be a great resource for our friends with GVHD. Titled Coping with Chronic Graft versus Host Disease, these phone sessions are facilitated by Sandra Mitchell, PhD, CRNP, AOCN and Michael Krumlauf, RN, MSN from the National Institutes of Health.
The FREE sessions are four weeks long with one phone call per week for groups of 8-10 survivors. The next group begins on October 20, 2011 and will discuss the following topics:
- Week 1: Overview of Chronic Graft versus Host Disease
- Week 2: Understanding and Living with Chronic Graft versus Host Disease
- Week 3: Exploring Options for Improving Health and Well-Being
- Week 4: Facing Forward: Developing Your Personal Plan for Managing Chronic Graft versus Host Disease and Living Well
For additional information or to register, please call: Tiffany Rowe at 800-LINK-BMT (800-546-5268) or email: tiffanyrowe@nbmtlink.org.
PROSE Patient Survey 2011
June 14, 2011 By Leave a Comment
Have you been treated with PROSE prosthetic devices in the past five (5) years? Then please take the Boston Foundation for Sight (BFS) PROSE Patient Survey! [Read more...]
Study Aims to Improve Transplant Survivors Quality of Life
February 18, 2011 By Leave a Comment
One of the eye health disorders some BFS patients are trying to manage is chronic ocular GVHD, an eye disease common for those who treated cancer with a transplant which can have a significant effect on one’s quality of life. [Read more...]
Emotional Empowerment
February 10, 2011 By 1 Comment
There’s no way around it, many patients with corneal disease struggle emotionally. And how could it be otherwise, since symptoms can negatively impact many quality of life issues such as ability to work, socialize, be a family member or just enjoy general leisure time? Ultimately, this impact can lead to some tough emotional burdens like depression and anxiety. [Read more...]