BostonSight PROSE Treatment Videos Demonstrate Device Application and Removal

PROSEinsertionWe wanted to take a moment and remind you about the series of detailed videos that shows the application and removal process for BostonSight® PROSE devices, as well as prosthetic device care and handling techniques. These instructional videos demonstrate various application and removal strategies that suit the needs of any PROSE device user. They are a great source of information whether you are a prospective patient wanting to know in more detail what it’s like to use PROSE devices, a caregiver needing a refresher on techniques or device care, or a current patient interested in finding out about an alternate procedure for device application or removal. [Read more…]

Managing Your Personal Health Records for Effective Coordinated Care

A diagnosis of a serious or chronic illness brings with it a host of health-care appointments involving multiple specialists along with plenty of diagnostic tests, medications, surgical procedures, hospitalizations, and more. All of these complexities add up to an immense amount of data that can be important information for every health-care provider you consult throughout your health journey. [Read more…]

Finding Financial Assistance for Medications

medicinesLife-threatening and chronic illnesses present many complications, including unexpected financial burdens. We’ve compiled a list of resources on our BFS website that may be helpful for dealing with financial difficulties resulting from health-care expenses.  [Read more…]

Sometimes Patients Teach Doctors

Doctor talking to patientFrom PROSE patient Mary Dalessio:

I have had many issues with my eyes over the 7 years since I received a stem cell transplant in 2004. The difficulties I faced included contracting Graft versus Host Disease (GVHD) which affected many systems in my body including my eyes. At first, my ophthalmologist attributed the problems to cataracts, and so I had cataract surgery in both eyes in 2007. This same year I also had an episode of spontaneous corneal erosion, in which I felt like I was having the worst migraine of my life. [Read more…]

My SJS Care Week 2014

This post was written by Mariam, an SJS survivor from Chicago. She has been attending SJS patient events at BFS for four years. 

survivors with proclamation at BBQI arrived in Dedham, MA around four in the afternoon, exhausted and worn down from my long trip from home. We checked in, dropped off our luggage, and waited. That period between arrival and meeting other SJS patients and their families is one filled with anticipation. I sat there on my bed thinking about how our first meeting and how the rest of the week would play out. Who would I meet? Who did I already know? And most importantly, what could I learn this time around? My family and I have been to four SJS Care Weeks and with each trip I left with something new. I left with new friends, new support systems, new tips and tricks concerning lenses and general medical care. When the time came, I got up and walked down the hall, nervous about what I would see behind the “SJS CARE WEEK” door.  I did find something when I opened that door- and that was love.

[Read more…]

Evaluating the Accuracy of Health Information in the Media

With the plethora of health information disseminated in the media on a daily basis and searchable on the Internet with the click of a button, how do you discern what’s valuable and what’s not? When faced with a serious or chronic illness, the availability of trustworthy and accurate medical information is vital to understanding and managing your condition.

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Ready for School? August Is Children’s Eye Health and Safety Month

Back to schoolIt’s almost back-to-school time and while you may be busy purchasing school supplies, shopping for new clothes and shoes, and filling out enrollment forms, don’t forget about your children’s eye health as they begin a new school year. The National Center for Children’s Vision and Eye Health at Prevent Blindness America and the American Academy of Ophthalmology are promoting August as Children’s Eye Health and Safety Month. August is a great month to schedule a comprehensive eye exam for your child and to make sure they have appropriate eye protection for sports and activities they may participate in during the coming school year.

[Read more…]

Coming Soon: SJS Care Week at BFS!

We are so excited for our favorite week of the year: SJS Care Week! Beginning on August 5, Boston Foundation for Sight will welcome our Stevens-Johnson Syndrome (SJS) patients and their families for a week of medical treatment and social support.

[Read more…]

National Symposium for Blood and Marrow Transplant Survivors

Symposium-Banner_2014_webIf you or a loved one is a survivor of a bone marrow, stem cell or cord blood transplant, please join us for a weekend of learning, sharing and celebration. Celebrating a Second Chance at Life, hosted by the Blood and Marrow Transplant Information Network (BMTinfonet.org), is a two day event, with expert presenters from cancer centers all over the country. This year’s symposium will be held in East Rutherford, NJ, about 10 miles from Manhattan.

[Read more…]

Emotional Empowerment

There’s no way around it, many patients with corneal disease struggle emotionally.  And how could it be otherwise, since symptoms can negatively impact many quality of life issues such as ability to work, socialize, be a family member or just enjoy general leisure time?  Ultimately, this impact can lead to some tough emotional burdens like depression and anxiety.

[Read more…]