Thanksgiving is traditionally a time to give thanks and reflect with gratitude on the many blessings in our lives. We gather with family and friends in celebration as we share a bountiful feast. Here at Boston Foundation for Sight we are thankful for partner organizations that help us fulfill our mission of restoring sight and transforming lives by treating complex corneal disease. [Read more...]
A diagnosis of a serious or chronic illness brings with it a host of health-care appointments involving multiple specialists along with plenty of diagnostic tests, medications, surgical procedures, hospitalizations, and more. All of these complexities add up to an immense amount of data that can be important information for every health-care provider you consult throughout your health journey. [Read more...]
Many people in our BFS community deal with complex health issues in addition to serious ocular surface diseases. As a result, our community members have much more exposure to the health-care system than others who are mostly healthy. Among the more significant changes in the health-care system over the last decade are shortened visits with providers. [Read more...]
If you had purchased a very old home and wished to restore it to its original state, you’d probably first begin by researching the history and looking for old photos or sketches. [Read more...]
Over the last several decades, the traditional model of health-care delivery has dramatically shifted with ownership of the process now predominantly in the hands of the health-care consumer instead of the provider. Patients are now more empowered in many of their health-care choices from insurance coverage, providers and facilities, and even treatment decisions. [Read more...]
Sponsored by the National Bone Marrow Transplant Link, this telephone education and support group for bone transplant survivors may be a great resource for our friends with GVHD. Titled Coping with Chronic Graft versus Host Disease, these phone sessions are facilitated by Sandra Mitchell, PhD, CRNP, AOCN and Michael Krumlauf, RN, MSN from the National Institutes of Health.
The FREE sessions are four weeks long with one phone call per week for groups of 8-10 survivors. The next group begins on October 20, 2011 and will discuss the following topics:
- Week 1: Overview of Chronic Graft versus Host Disease
- Week 2: Understanding and Living with Chronic Graft versus Host Disease
- Week 3: Exploring Options for Improving Health and Well-Being
- Week 4: Facing Forward: Developing Your Personal Plan for Managing Chronic Graft versus Host Disease and Living Well
For additional information or to register, please call: Tiffany Rowe at 800-LINK-BMT (800-546-5268) or email: firstname.lastname@example.org.
One of the eye health disorders some BFS patients are trying to manage is chronic ocular GVHD, an eye disease common for those who treated cancer with a transplant which can have a significant effect on one’s quality of life. [Read more...]
There’s no way around it, many patients with corneal disease struggle emotionally. And how could it be otherwise, since symptoms can negatively impact many quality of life issues such as ability to work, socialize, be a family member or just enjoy general leisure time? Ultimately, this impact can lead to some tough emotional burdens like depression and anxiety. [Read more...]