Blood Test for Early Detection of Sjögren’s Syndrome Now Available

In a blog post last December, we reported that a new autoantibody associated with Sjögren’s syndrome had been discovered and that efforts were underway to develop a lab test specifically for diagnosing this disease by detecting the presence of these new biomarkers. We’re pleased to share the recent announcement from Immco Diagnostics that this new diagnostic test has been approved and is now available for use by physicians throughout North America. [Read more…]

Rare Disease Support Resources and Rare Disease Day 2013

A rare disease is defined as one that affects fewer than 200,000 Americans. Nearly 7,000 rare diseases impact the lives of almost 30 million Americans. Here at BFS, a number of these rare diseases are very familiar to us and to our patient community. [Read more…]

New Sjögren’s Antibody Discovery Improves Diagnosis

With the approach of the new year also comes new hope for those with Sjögren’s syndrome. A recent discovery of a new autoantibody associated with Sjögren’s syndrome is leading to the development of a new diagnostic test that will more accurately identify a diagnosis of Sjögren’s early in the disease process. [Read more…]

Olympians with Sjögren’s Triumph and Spread Awareness

The United States just concluded its most successful Olympics to date with a total of 104 medals, 46 of them gold–more than any other country. As I watched the games from my comfy couch, I shared in the tears and triumphs of our U.S. athletes. But two athletes in particular stood out for me:  tennis player Venus Williams and soccer team member Shannon Boxx who have both been diagnosed with Sjögren’s Syndrome. [Read more…]

We Went Blue! Did You?

On Monday, we went Go Bold Blue at BFS in support of the Sjögren’s Syndrome Foundation (SSF) and Sjögren’s awareness month. We were clad in blue and denim and helping to educate others about Sjögren’s syndrome as well as share our knowledge of treatments for the dry eye that is one of the hallmarks of this disease. Informational brochures, fliers, and stickers were available in our office.

With the help of matching staff contributions, BFS donated hundreds of dollars to the Sjögren’s Syndrome Foundation. These funds will help support the SSF’s new goal to shorten the time to diagnosis by 50% in 5 years.

Did you go blue? We hope you did as it supported this cause that is important to so many of us in the BFS community. Thank you.

The Sjögren’s Syndrome Foundation Needs Your Stories

If you or your family has been affected by Sjögren’s Syndrome, please take a few minutes to share your story with the Sjögren’s Syndrome Foundation (SSF) and lend your voice to their advocacy efforts as they testify on Capitol Hill next week. [Read more…]

April is Sjögren’s Awareness Month

Spring is in full swing across the country this month—a time of renewal and transformation as the days grow longer, temperatures rise, and flowers begin to bloom. The Sjögren’s Syndrome Foundation reminds us that April is also Sjögren’s awareness month with a focus on their new campaign to transform the level of awareness of Sjögren’s syndrome and shorten the time to diagnosis by 50% in 5 years. [Read more…]

Updated Sjögren’s Syndrome Self-Help Booklet Available

The Sjögren’s Syndrome Foundation has recently updated their Self-Help Booklet and has made it available to download free of charge.  In this third edition, you will find the latest information and strategies for coping with the challenges presented by Sjögren’s Syndrome. Topics covered include: [Read more…]

Sjögren’s Syndrome Foundation Aims to Shorten Time to Diagnosis

The Sjögren’s Syndrome Foundation (SSF) has recently launched a campaign with the goal of reducing the time to diagnose Sjögren’s by 50% within 5 years. Sjögren’s Syndrome, a systemic autoimmune disorder in which the body’s immune system attacks its own moisture-producing glands, affects as many as 4 million Americans with an estimated additional 3 million more cases undiagnosed. [Read more…]

Get Fit and Support the Sjögren’s Syndrome Foundation

The Sjögren’s Syndrome Foundation is seeking participants for its 2012 Team Sjögren’s:  a training program to help prepare and support team members to run a marathon (26.2 miles) or half-marathon (13.1 miles). This year’s team will run in the 2012 Country Music Marathon and Half-Marathon in Nashville, Tennessee, on April 28, 2012. [Read more…]