Stevens Johnson Syndrome: What Is It and Why Should We Be Informed?

Since many patients arrive at BostonSight for PROSE treatment to alleviate persistent ocular symptoms from Stevens Johnson syndrome, we see firsthand their daily struggles with the aftermath and feel strongly about our dedication to SJS support, advocacy, and education.
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Awareness Can Lead to Action: SJS Awareness Month

Imagine keeping vigil all alone at the hospital bedside of your 10-month-old as she struggles to survive. You’ve just been told by medical staff that she has developed a severe disease that you have never heard of and you are unable to find any substantial information about this illness. You are grief-stricken and do not even know where to turn for support or information. [Read more…]

Eye Health Benefits of Anthoxanthins

potatoes“Eat the Rainbow” is a common mantra of the nutrition-savvy as a way to encourage everyone to ensure they are getting enough essential nutrients in their diet. The more variety of colored foods you consume, the greater variety of nutrients in your diet. However, one overlooked piece of this visual reminder is an essential component of good nutrition as well:  the color white. While many people think of whites as simple starches with poor nutritional benefits, such as pasta, white bread, or pastries, white-colored fruits and vegetables are essential for good health and have benefits for the eyes. [Read more…]

Wavefront Technologies Utilized for More Accurate Vision Correction

wavefront technologyWavefront optic technology was developed by astronomers to obtain clearer, less distorted views of planets and stars. Eye care professionals are now successfully adopting this technology in order to address their patients’ complex vision disorders. Potentially, this new approach could dramatically change the way in which eye care providers diagnose and treat many vision issues. [Read more…]

Link Discovered Between Fibromyalgia and Dry Eye

Dry eye can result from many causes, including underlying conditions such as Stevens Johnson syndrome, Graft vs. Host disease, Sjögren’s syndrome, and others. Whatever the cause, the symptoms are the same and can occur to a degree that makes life unbearable. [Read more…]

Anti-Inflammatory Diet and Healthy Eyes

Variety of organic vegetables and fruits Inflammation in the body has a positive role in helping to heal infections and injuries, but ongoing inflammation that is no longer needed for healing can have the opposite effect. Chronic inflammation can adversely impact health. Many of our BostonSight® PROSE patients struggle with health conditions in which inflammation plays a central role, including rheumatoid arthritis, Sjögren’s syndrome, graft vs. host disease, and Stevens Johnson syndrome. Dry eye disease can also be a direct result of inflammation. [Read more…]

Vitamin D and Your Eyes

Vitamin D infographicsThe Vitamin D Council, a nonprofit organization dedicated to providing reliable and evidence-based information about vitamin D, notes that researchers consider lack of sufficient vitamin D to be pandemic. [Read more…]

Stevens Johnson Syndrome Foundation Asks for Support for Mandatory Reporting System of Drug Reactions

SJS ribbonThe Stevens Johnson Syndrome Foundation is reaching out to our BostonSight® PROSE community to ask for help with promoting a citizen petition to the Food and Drug Administration (FDA) for a Mandatory Reporting System of Adverse Drug Reactions. This is a great and easy way to add your voice in support of a cause that is important to so many in our BFS community whose lives have been impacted by Stevens Johnson Syndrome (SJS). [Read more…]

Early Use of Amniotic Membrane Transplantation Helps Prevent Vision Loss from SJS/TENS

As we continue our efforts to help spread awareness of Stevens Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TENS), we also like to share information on advances in treatment of these devastating illnesses.  A 2012 study led by Dr. Charles Bouchard, chair of the department of ophthalmology at Loyola University Medical Center, analyzed the use of amniotic membrane transplants on the eyes of patients with SJS and TENS. [Read more…]

My SJS Care Week 2014

This post was written by Mariam, an SJS survivor from Chicago. She has been attending SJS patient events at BFS for four years. 

survivors with proclamation at BBQI arrived in Dedham, MA around four in the afternoon, exhausted and worn down from my long trip from home. We checked in, dropped off our luggage, and waited. That period between arrival and meeting other SJS patients and their families is one filled with anticipation. I sat there on my bed thinking about how our first meeting and how the rest of the week would play out. Who would I meet? Who did I already know? And most importantly, what could I learn this time around? My family and I have been to four SJS Care Weeks and with each trip I left with something new. I left with new friends, new support systems, new tips and tricks concerning lenses and general medical care. When the time came, I got up and walked down the hall, nervous about what I would see behind the “SJS CARE WEEK” door.  I did find something when I opened that door- and that was love.

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