Rare Disease Support Resources and Rare Disease Day 2013

A rare disease is defined as one that affects fewer than 200,000 Americans. Nearly 7,000 rare diseases impact the lives of almost 30 million Americans. Here at BFS, a number of these rare diseases are very familiar to us and to our patient community. [Read more…]

27th Annual FD Family Day and Conference June 10 in NYC

The Dysautonomia Foundation is presenting its annual Family Day and Conference for families who have been affected by Familial Dysautonomia (FD). Some in our PROSE treatment community have FD, a rare genetic neurological condition that affects the sensory and autonomic nervous systems causing a number of severe health problems including ophthalmologic problems. Each year, the Dysautonomia Foundation, dedicated to research, support, and public awareness of FD, brings together FD families for a day of information sharing, networking, and fun. [Read more…]